[00:13]
Public Library is the concept, the idea, to encourage people to become a
librarian, where a librarian is a person which can allow access to books – and
also which has a catalogue or index, so that it's searchable. [00:32] And the
person, the human being, can communicate, can talk with others who are
interested in that catalogue of books. [00:43] And then when you have a
librarian, and you have a lot of librarians, you have a Public Library,
because we have access to books, we have a catalogue, and we have a librarian.
That's the basic set up. [00:55] And in order to really work, in practice, we
need to introduce a set of tools which are easy to use, like Calibre, for
example, for book management. [01:07] And then also some part of that set up
should be also developed because at the moment, because of the configuration
of the routers, IP addresses and other things, it's not that easy to share
your local library which you have on your laptop with the world. [01:30] So we
also provide... When I say ‘we,’ it's a small team, at the moment, of
developers who try to address that problem. [01:38] We don't need to reinvent
the public library. It's invented, and it should be just maintained. [01:47]
The old-school public libraries – they are in decline because of many reasons.
And when it comes to the digital networks, the digital books, it's almost like
the worst position. [01:59] For example, public libraries in the US, they are
not allowed to buy digital books, for example from Penguin. So even when they
want to buy, it's not that they are getting them, it's that they can't buy the
books. [02:16] By the current legal regulation, it's considered as illegal – a
million of books, or even more, are unavailable, and I think that these books
should be really available. [02:29] And it doesn't really matter how it got on
Internet – did it come from a graphic designer who is preparing that for
print, or if it was uploaded somewhere from the author of the book (that is
also very common, especially in humanities), or if it was digitised anywhere.
[02:50] So these are the books which we have, and we can't be blinded, they
are here. The practice at the moment is almost like trying to find a
prostitute or something, so when you want to get a book online you need to get
onto the websites with advertisements for casinos, for porn and things like
that. [03:14] I don't think that the library should be like that.
[03:18]
Book Management
[03:22]
What we are trying to provide is just suggesting what kind of book management
software they can use, and also what kind of new software tools they can
install in order to easily get the messy directory into the directory of
metadata which Calibre can recognise – and then you can just use Calibre. The
next step is if you can share your local library with the world. [03:52] You
need something like a management software where it's easy to see who are the
authors, what the titles, publishers and all of the metadata – and it's
accessible from the outside.
[04:08]
Calibre
[04:12]
Calibre is a book management software. It's developed by Kovid Goyal, a
software developer. [04:22] It's a free software, open source, and it started
like many other free software projects. It started as a small tool to solve
very particular small problems. [04:31] But then, because it was useful, it
got more and more users, and then Kovid started to develop it more into a
proper, big book management software. At the moment it has more that 10
million registered users who are running that. [04:52] It does so many things
for book management. It's really ‘the’ software tool... If you have an
e-reader, for example, it recognises your e-reader, it registers it inside of
Calibre and then you can easily just transfer the books. [05:08] Also for
years there was a big problem of file formats. So for example, Amazon, in
order to keep their monopoly in that area, they wouldn't support EPUB or PDF.
And then if you got your book somewhere – if you bought it or just downloaded
from the Internet, you wouldn't be able to read it on your reader. [05:31]
Then Calibre was just developing the converter tools. And it was all in one
package, so that Calibre just became the tool for book management. [05:43] It
has a web server as a part of it. So in a local area network – if you just
start that web server and you are running a local area network, it can have a
read-only searchable access to your local library, to your books, and it can
search by any of these metadata.
[06:05]
Tools Around Calibre
[06:09]
I developed a software which I call Let's Share Books, which is super small
compared to Calibre. It just allows you, with one click, to get your library
shared on the Internet. [06:24] So that means that you get a public URL, which
says something like www some-number dot memoryoftheworld dot net, and that is
the temporary public URL. You can send it to anyone in the world. [06:37] And
while you are running your local web server and share books, it would just
serve these books to the Internet. [06:45] I also set up a web chat – kind of
a room where people can talk to each other, chat to each other. [06:54] So
it’s just, trying to develop tools around Calibre, which is mostly for one
person, for one librarian – to try to make some kind of ecosystem for a lot of
librarians where they can meet with their readers or among themselves, and
talk about the books which they love to read and share. [07:23] It’s mostly
like a social networking around the books, where we use the idea and tradition
of the public library. [07:37] In order to get there I needed to set up a
server which only does routing. So with my software I don’t know which books
are transferred, anything. It’s just like a router. [07:56] You can do that
also if you have control of your router, or what we usually call modem, so the
device which you use to get to the Internet. But that is quite hard to hack,
just hackers know how to do that. [08:13] So I just made a server on the
Internet which you can use with one click, and it just routes the traffic
between you, if you’re a librarian, and your users, readers. So that’s that
easy.
[08:33]
Librarians
[08:38] It’s super easy to become a librarian, and that is what we should
celebrate. It’s not that the only librarians which we have were the librarians
who were the only ones wanting to become a librarian. [08:54] So lots of
people want to be a librarian, and lots of people are librarians whenever they
have a chance. [09:00] So you would probably recommend me some books which you
like. I’ll recommend you some books which I like. So I think we should
celebrate that now it’s super easy that anyone can be a librarian. [09:11] And
of course, we will still need professional librarians in order to push forward
the whole field. But that goes, again, in collaboration with software
engineers, information architectes, whatever… [09:26] It’s so easy to have
that, and the benefits of that are so great, that there is no reason why not
to do that, I would say.
[09:38]
Functioning
[09:43]
If you want to share your collection then you need to install at the moment
Calibre, and Let’s Share Books software, which I wrote. But also you can – for
example, there is a Calibre plugin for Aaaaarg, so if you use Calibre… from
Calibre you can search Aaaaarg, you can download books from Aaaaarg, you can
also change the metadata and upload the metadata up to Aaaaarg.
[10:13]
Repositories
[10:17]
At the moment the biggest repository for the books, in order to download and
make your catalogue, is Library Genesis. It’s around 900,000 books. It’s
libgen.info, libgen.org. And it’s a great project. [10:33] It’s done by some
Russian hackers, who also allow anyone to download all of that. It’s 9
Terabytes of books, quite some chunk of hard disks which you need for that.
[10:47] And you can also download PHP, the back end of the website and the
MySQL database (a thumb of the MySQL database), so you can run your own
Library Genesis. That’s one of the ways how you can do that. [11:00] You can
also go and join Aaaaarg.org, where it is also not just about downloading
books and uploading books, it’s also about communication and interpretation of
making, different issues and catalogues. [11:14] It’s a community of book
lovers who like to share knowledge, and who add quite a lot of value around
the books by doing that. [11:26] And then there is… you can use Calibre and
Let’s Share Books. It’s just one of these complimentary tools. So it’s not
really that Calibre and Let’s Share Books is the only way how you can today
share books.
[11:45]
Goal
[11:50]
What we do also has a non-hidden agenda for fighting for the public library. I
would say that most of the people we know, even the authors, they all
participate in the huge, massive Public Library – which we don’t call Public
Library, but usually just trying to hide that we are using that because we are
afraid of the restrictive regime. [12:20] So I don’t see a reason why we
should shut down such a great idea and great implementation – a great resource
which we have all around the world. [12:30] So it’s just an attempt to map all
of these projects and to try to improve them. Because, in order to get it into
the right shape, we need to improve the metadata. [12:47] Open Library, a
project which started also with Aaron Swartz, has 20 millions items, and we
use it. There is a basedata.org which connects the hash files, the MD5 hashes,
with the Open Library ID. And we try to contribute to Open Library as much as
possible. [13:10] So with very few people, around 5 people, we can improve it
so much that it will be for a billion of users a great Public Library, and at
the same time we can have millions of librarians, which we never had before.
So that’s the idea. [13:35] The goal is just to keep the Public Library. If we
didn’t screw up the whole situation with the Public Library, probably we’d
just try to add a little bit of new software, and new ways that we can read
the books. [13:53] But at the moment [it’s] super important actually to keep
this infrastructure running, because this super important infrastructure for
the access to knowledge is now under huge threat.
[14:09]
Copyright
[14:13]
I just think that it’s completely inappropriate – that copyright law is
completely inappropriate for the Public Library. I don’t know about other
cases, but in terms of Public Library it’s absolutely inappropriate. [14:29]
We should find the new ways of how to reward the ones who are adding value to
sharing knowledge. First authors, then anyone who is involved in public
libraries, like librarians, software engineers – so everyone who is involved
in that ecosystem should be rewarded, because it’s a great thing, it’s a
benefit for the society. [15:03] If this kind of things happens, so if the law
which regulates this blocks and doesn’t let that field blossom, it’s something
wrong with that law. [15:16] It’s getting worse and worse, so I don’t know for
how long we should wait, because while we’re waiting it’s getting worse.
[15:24] I don’t care. And I think that I can say that because I’m an artist.
Because all of these laws are made saying that they are representing art, they
are representing the interest of artists. I’m an artist. They don’t really
represent my interests. [15:46] I think that it should be taken over by the
artists. And if there are some artists who disagree – great, let’s have a
discussion.
[15:58]
Civil Disobedience
[16:03]
In the possibilities of civil disobedience – which are done also by
institutions, not just by individuals – and I think that in such clear cases
like the Public Library it’s easy. [16:17] So I think that what I did in this
particular case is nothing really super smart – it’s just reducing this huge
issue to something which is comprehensible, which is understandable for most
of the people. [16:31] There is no one really who doesn’t understand what
public library is. And if you say to anyone in the world, saying, like hey, no
more public libraries, hey, no books anymore, no books for the poor people. We
are just giving up on something which we almost consensually accepted through
the whole world. [16:55] And I think that in such clear cases, I’m really
interested [in] what institutions could do, like Transmediale. I’m now in
[Akademie] Schloss Solitude, I also proposed to make a server with a Public
Library. If you invest enough it’s a million of books, it’s a great library.
[17:16] And of course they are scared. And I think that the system will never
really move if people are not brave. [17:26] I’m not really trying to
encourage people to do something where no one could really understand, you
know, and you need expertise or whatever. [17:37] In my opinion this is the
big case. And if Transmediale or any other art institution is playing with
that, and showing that – let’s see how far away we can support this kind of
things. [17:56] The other issue which I am really interested in is what is the
infrastructure, who is running the infrastructures, and what kind of
infrastructures are happen in between these supposedly avant-garde
institutions, or something. [08:12] So I’m really interested in raising these
issues.
[18:17]
Art Project
[18:21]
Public Library is also an art project where… I would say that just in the same
way that corporations, by their legal status, can really kind of mess around
with different… they can’t be that much accountable and responsible – I think
that this is the counterpart. [18:44] So civil disobedience can use art just
the same way that corporations can use their legal status. [18:51] When I was
invited as a curator and artist to curate the HAIP Festival in Ljubljana, I
was already quite into the topic of sharing access to knowledge. And then I
came up with this idea and everybody liked it and everybody was enthusiastic.
It's one of these ideas where you can see that it’s great, there is no one
really who would oppose to that. [19:28] At the same time there was an
exhibition, Dear Art, curated by WHW, quite established curators. And then it
immediately became an art piece for that exhibition. Then I was invited here
to Transmediale, and have a couple of other invitations. [19:45] I think that
it also shows that art institutions are accepting that, they play with that
idea. And I think that this kind of projects – by having that acceptance it
becomes the issue, it becomes the problem of the whole arts establishment.
[20:10] So I think that if I do this in this way, and if there is a curator
who invites this kind of projects – so who invites Public Library into their
exhibition – it’s also showing their kind of readiness to fight for that
issue. [20:27] And if there are a number of art festivals, a number of art
exhibitions, who are supporting this kind of, lets say, civil disobedience,
that also shows something. [20:38] And I think that that kind of context
should be pushed into the confrontation, so it’s not anymore just playing “oh,
is it is ok, it is not? We should deal with all the complexity…” [20:57] There
is no real complexity here. That complexity is somewhere else, and in some
other step we should take care of that. But this is an art piece, it’s a well
established art piece. [21:11] If you make a Public Library, I'm fine, I’m
sacrificing for taking the responsibility. But you shouldn't melt down that
art piece, I think. [21:26] And I feel super stupid that such a simple concept
should be, in 2013, articulated to whom? In many ways it’s like playing dummy,
I play dummy. It’s like, why should I? [21:50] When we started to play in
Ljubljana like software developers we came up with so many great ideas of how
to use those resources. So it was immediately… just after couple of hours we
had tools – visualisations of that, a reader of Wikipedia which can embed any
page which is referred, as a reference, a quote. [22:17] It was immediately
obvious for anyone there and for anyone from the outside what a huge resource
is having a Public Library like that – and what’s the huge harm that we don’t
have it. [22:32] But still we need to play dummy, I need to play the artist’s
role, you know.
Graziano
Pirate Care: How do we imagine the health care for the future we want?
2018
Pirate Care - How do we imagine the health care for the future we want?
Oct 5, 2018 · 19 min read
by Valeria Graziano
A recent trend to reimagine the systems of care for the future is based on many of the principles of self-organization. From the passive figure of the patient — an aptly named subject, patiently awaiting aid from medical staff and carers — researchers and policymakers are moving towards a model defined as people-powered health — where care is discussed as transforming from a top-down service to a network of coordinated actors.
At the same time, for large numbers of people, to self-organize around their own healthcare needs is not a matter of predilection, but increasingly one of necessity. In Greece, where the measures imposed by the Troika decimated public services, a growing number of grassroots clinics set up by the Solidarity Movement have been providing medical attention to those without a private insurance. In Italy, initiatives such as the Ambulatorio Medico Popolare in Milan offer free consultations to migrants and other vulnerable citizens.
The new characteristic in all of these cases is the fact that they frame what they do in clearly political terms, rejecting or sidestepping the more neutral ways in which the third sector and the NGOs have long presented care practices as apolitical, as ways to help out that should never ask questions bigger than the problems they set out to confront, and as standing beyond left and right (often for the sake of not alienating potential donors and funders).
Rather, the current trends towards self-organization in health care are very vocal and clear in their messages: the care system is in crisis, and we need to learn from what we know already. One thing we know is that the market or the financialization of assets cannot be the solution (do you remember when just a few years ago Occupy was buying back healthcare debts from financial speculators, thus saving thousands Americans from dire economic circumstances? Or that scene from Michael Moore’s Sicko, the documentary where a guy has to choose which finger to have amputated because he does not have enough cash for saving both?).
Another thing we also know is that we cannot simply hold on to past models of managing the public sector, as most national healthcare systems were built for the needs of the last century. Administrations have been struggling to adapt to the changing nature of health conditions (moving from a predominance of epidemic to chronic diseases) and the different needs of today’s populations. And finally, we most definitely know that to go back to even more conservative ideas that frame care as a private issue that should fall on the shoulders of family members (and most often, of female relatives) or hired servants (also gendered and racialised) is not the best we can come up with.
Among the many initiatives that are rethinking how we organize the provision of health and care in ways that are accessible, fair, and efficient, there are a number of actors — mostly small organizations — who are experimenting with the opportunities introduced by digital technologies. While many charities and NGOs remain largely ignorant of the opportunities offered by technology, these new actors are developing DIY devices, wearables, 3D-printed bespoke components, apps and smart objects to intervene in areas otherwise neglected by the bigger players in the care system. These practices are presenting a new mode of operating that I want to call ‘pirate care’.
Pirate Care
Piracy and Care are not always immediately relatable notions. The figure of the pirate in popular and media cultures is often associated with cunning intelligence and masculine modes of action, of people running servers which are allowing people to illegally download music or movie files. One of the very first organizations that articulated the stakes of sharing knowledge was actually named Piratbyrån. “When you pirate mp3s, you are downloading communism” was a popular motto at the time. And yet, bringing the idea of a pirate ethics into resonance with contemporary modes of care invites a different consideration for practices that propose a paradigm change and therefore inevitably position themselves in tricky positions vis-à-vis the law and the status quo. I have been noticing for a while now that another kind of contemporary pirate is coming to the fore in our messy society in the midst of many crises. This new kind of pirate could be best captured by another image: this time it is a woman, standing on the dock of a boat sailing through the Caribbean sea towards the Mexican Gulf, about to deliver abortion pills to other women for whom this option is illegal in their country.
Women on Waves, founded in 1999, engages in its abortion-on-boat missions every couple of years. They are mostly symbolic actions, as they are rather expensive operations, and yet they are potent means for stirring public debate and have often been met with hostility — even military fleets. So far, they have visited seven countries so far, including Mexico, Guatemala and, more recently, Ireland and Poland, where feminists movements have been mobilizing in huge numbers to reclaim reproductive rights.
According to official statistics, more than 47,000 women die every year from complications resulting from illegal, unsafe abortion procedures, a service used by over 21 million women who do not have another choice. As Leticia Zenevich, spokesperson of Women on Waves, told HuffPost: “The fact that women need to leave the state sovereignty to retain their own sovereignty ― it makes clear states are deliberately stopping women from accessing their human right to health.” Besides the boat campaigns, the organization also runs Women on Web, an online medical abortion service active since 2005. The service is active in 17 languages, and it is helping more than 100,000 women per year to get information and access abortion pills. More recently, Women on Waves also begun experimenting with the use of drones to deliver the pills in countries impacted by restrictive laws (such as Poland in 2015 and Northern Ireland in 2016).
Women on Waves are the perfect figure to begin to illustrate my idea of ‘pirate care’. By this term I want to bring attention to an emergent phenomenon in the contemporary world, where more and more often initiatives that want to bring support and care to the most vulnerable subjects in the most unstable situations, increasingly have to do so by operating in that grey zone that exists between the gaps left open by various rules, laws and technologies. Some thrive in this shadow area, carefully avoiding calling attention to themselves for fear of attracting ferocious polemics and the trolling that inevitably accompanies them. In other cases, care practices that were previously considered the norm have now been pushed towards illegality.
Consider for instance the situation highlighted by the Docs Not Cops campaign that started in the UK four years ago, when the government had just introduced its ‘hostile environment’ policy with the aim to make everyday life as hard as possible for migrants with an irregular status. Suddenly, medical staff in hospitals and other care facilities were supposed to carry out document checks before being allowed to offer any assistance. Their mobilization denounced the policy as an abuse of mandate on the part of the Home Office and a threat to public health, given that it effectively discouraged patients to seek help for fear of retaliations. Another sadly famous example of this trend of pushing many acts of care towards illegality would the straitjacketing and criminalization of migrant rescuing NGOs in the Mediterranean on the part of various European countries, a policy led by Italian government. Yet another example would be the increasing number of municipal decrees that make it a crime to offer food, money or shelter to the homeless in many cities in North America and Europe.
Hacker Ethics
This scenario reminds us of the tragic story of Antigone and the age-old question of what to do when the relationship between what the law says and one what feels it is just becomes fraught with tensions and contradictions. Here, the second meaning of ‘pirate care’ becomes apparent as it points to the way in which a number of initiatives have been responding to the current crisis by mobilizing tactics and ethics as first developed within the hacker movement.
As described by Steven Levy in Hackers, the general principles of a hacker ethic include sharing, openness, decentralization, free access to knowledge and tools, and an effort of contributing to society’s democratic wellbeing. To which we could add, following Richard Stallman, founder of the free software movement, that “bureaucracy should not be allowed to get in the way of doing anything useful.” While here Stallman was reflecting on the experience of the M.I.T. AI Lab in 1971, his critique of bureaucracy captures well a specific trait of the techno-political nexus that is also shaping the present moment: as more technologies come to mediate everyday interactions, they are also reshaping the very structure of the institutions and organizations we inhabit, so that our lives are increasingly formatted to meet the requirements of an unprecedented number of standardised procedures, compulsory protocols, and legal obligations.
According to anthropologists David Graeber, we are living in an era of “total bureaucratization”. But while contemporary populism often presents bureaucracy as a problem of the public sector, implicitly suggesting “the market” to be the solution, Graeber’s study highlights how historically all so-called “free markets” have actually been made possible through the strict enforcement of state regulations. Since the birth of the modern corporation in 19th century America, “bureaucratic techniques (performance reviews, focus groups, time allocation surveys …) developed in financial and corporate circles came to invade the rest of society — education, science, government — and eventually, to pervade almost every aspect of everyday life.”
The forceps and the speculum
And thus, in resonance with the tradition of hacker ethics, a number of ‘pirate care’ practices are intervening in reshaping what looking after our collective health will look like in the future. CADUS, for example, is a Berlin based NGO which has recently set up a Crisis Response Makerspace to build open and affordable medical equipment specifically designed to bring assistance in extreme crisis zones where not many other organizations would venture, such as Syria and Northern Iraq. After donating their first mobile hospital to the Kurdish Red Crescent last year, CADUS is now working to develop a second version, in a container this time, able to be deployed in conflict zones deprived of any infrastructure, and a civil airdrop system to deliver food and medical equipment as fast as possible. The fact that CADUS adopted the formula of the makerspace to invent open emergency solutions that no private company would be interested in developing is not a coincidence, but emerges from a precise vision of how healthcare innovations should be produced and disseminated, and not only for extreme situations.
“Open source is the only way for medicine” — says Marcus Baw of Open Health Hub — as “medical software now is medicine”. Baw has been involved in another example of ‘pirate care’ in the UK, founding a number of initiatives to promote the adoption of open standards, open source code, and open governance in Health IT. The NHS spends about £500 million each time it refreshes Windows licenses, and aside from avoiding the high costs, an open source GP clinical system would be the only way to address the pressing ethical issue facing contemporary medicine: as software and technology become more and more part of the practice of medicine itself, they need to be subject to peer-review and scrutiny to assess their clinical safety. Moreover, that if such solutions are found to be effective and safe lives, it is the duty of all healthcare practitioners to share their knowledge with the rest of humanity, as per the Hippocratic Oath. To illustrate what happens when medical innovations are kept secret, Baw shares the story of the Chamberlen family of obstetricians, who kept the invention of the obstetric forceps, a family trade secret for over 150 years, using the tool only to treat their elite clientele of royals and aristocracy. As a result, thousands of mothers and babies likely died in preventable circumstances.
It is perhaps significant that such a sad historical example of the consequences ofclosed medicine must come from the field of gynaecology, one of the most politically charged areas of medical specialization to this day. So much so that last year another collective of ‘pirate carers’ named GynePunk developed a biolab toolkit for emergency gynaecological care, to allow those excluded from the reproductive healthcare — undocumented migrants, trans and queer women, drug users and sex workers — to perform basic checks on their own bodily fluids. Their prototypes include a centrifuge, a microscope and an incubator that can be cheaply realised by repurposing components of everyday items such as DVD players and computer fans, or by digital fabrication. In 2015, GynePunk also developed a 3D-printable speculum and — who knows? — perhaps their next project might include a pair of forceps…
As the ‘pirate care’ approach keeps proliferating more and more, its tools and modes of organizing is keeping alive a horizon in which healthcare is not de facto reduced to a privilege.
PS. This article was written before the announcement of the launch of Mediterranea, which we believe to be another important example of pirate care. #piratecare #abbiamounanave